Tuesday, September 4, 2018 was a memorable day.
It was the day I received the news that my pressure wound healed. It was also one year ago to the day that I broke the news of my wound diagnosis on Facebook. Fifty excess pounds ago as well, I realized as I watched the video.
I knew when I shared the healing news that some might think this journey was complete, that I would immediately be sitting up and that my life would resume as it had before the wound interrupted it. I also knew that would not be the case. A “new normal” is now staring me in the face.
When the doctor told me the wound had healed, he also said that I was to continue on bed rest and come in for weekly check-ups for three more weeks to ensure that my derrière stays healed. If it does, then I can start what is being called a sitting protocol. This is where I sit for perhaps a half-hour a day for a time, then an hour, then two hours, and so on, until I reach this “new normal”, which is supposedly sitting only eight to 10 hours a day for the rest of my life.
Yup. The wind was knocked out of me with that news this past February. I have not shared it widely until now because I have been absorbing this gut punch.
More accurately, I have been trying to figure out how I can buck the system, or at least modify it to fit my lifestyle, because I couldn’t imagine how I was going to do all the things I wanted to do with this restriction.
Despite my handicap, or perhaps because of it, I lead a very active life … out and about on a regular basis facilitating my inspirational workshops, networking, spending time in my favorite virtual offices writing new inspirational material, creating websites and social media profiles, meeting with clients, socializing, etc. As long as I had access to a wheelchair-friendly restroom, I could move about my day easily and with few restrictions.
But now … Hey Universe, Is this really the “new normal?” Are you telling me I am sentenced to sitting only eight to 10 hours a day for the rest of my life? How the frack am I going to do that and still maintain an active lifestyle? Un-freaking-imaginable, not to mention, un-bleeping-acceptable.
Is this punishment for my already embarrassing weight gain that supposedly contributed to the pressure wound in the first place? (Shaking my fist at the sky)
Believe me when I tell you that bitching about one of life’s crappy curve balls becomes counterproductive very quickly. I have to move on and figure out things like:
- How to get in a bathtub (Sitting on a hard surface, even for a short bath, will probably be a no-no.)
- How to drive ( I cannot drag my butt over the wheel of my wheelchair to get in my driver’s seat like I used to do.)
- How to travel by car or by plane for long trips (Wouldn’t a tour bus be awesome?!)
Have I figured any of this out yet? Nope, and this is just the tip of the iceberg. I have tons of logisitics to figure out. As Marie Forleo says, “Everything is figureoutable.” Well, let me tell you, InspiraGang, I am up to the challenges. I can do this. I know I can.
More to come on this topic in future blog posts.
When you were faced with a “new normal”, how did you deal with it? Please share your experience in the comments below.
Your never-normal InspiraGirl (and thank God for that!),